Psalms 139
13 For You created my inmost being; You knit me together in my mother's womb. 14 I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well.

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This site is devoted to Valerie and her heroic battle against the Infantile Spasms, the most catastrophic epileptic syndrome.

Site Last Update: Oct 21, 2008
(Excluding Blog Contents)






Val got her Zippie quickie!

Yeah! Thank God! Finally Val got her wheelchair (got it on the last week of April), it is very nice and fit perfectly. It is just in time as a birthday gift for her, perfect timing! We did not formally celebrate her Birthday this year, but thankful for those who remember her birthday and bought her wonderful gifts, cards and your birthday wishes. Thank you a...
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Elaine @ 11:06 

Quick Updates on April

She was sick for about 2 weeks, caught a virus. Mom and dad were sick too... We had an ARD meeting at her home school, they basically went through all the services she will get and also informed us the school she is going to. We decided to let her start school during Fall semester. It is always hard to say goodbye.... She will turns 3 soon,...
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Elaine @ 10:25 

MDCP, TX

I have some parents asking how Val get the MDCP service. Initially I called DADS (Department of Aging and Disabilities Services) at Austin to put Val on waiting list for MDCP. Since we desperately needed help, and we heard the waiting list is going to be 3 years and above, so we decided to go for the MFP program (Money Follow a  Person Program), which I...
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Elaine @ 10:56 

ZZZ Study

Wow, it has been a while we did not update Val's blog. we've been busy searching, deciding a way  for Val to get therapy after she turns 3, she will graduate from ECI soon (They only serve Children from Birth to 3.) There are lots of resources I found, but just have to decide which is best for Val, and affordable...of course. May God give us wisdom.Nurs...
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Elaine @ 06:23 

MDCP got approved!

Thank God! Val's MDCP finally got approved! Now we are working with a Home Health Agency to get nursing help.Other than that, she will turns 3 soon, (time flies... I miss her little double round thight and her chubby cheeks),  we are also working with local ISD on the PPCD (preschool program for children with disabilities) program. Lots of assessment an...
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Elaine @ 16:44 

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